Haemophilia A is a rare disease that mainly affects men. In Germany, only around 4,000 to 6,000 people live with this condition. We know how important it is – especially with a rare disease – to connect with others who have similar experiences. As part of the ACTIVE A campaign, we set ourselves the task of building a strong social media community where those affected and their families can find information, tips and support around haemophilia A.

Patients and family members who blog for us are the source and inspiration for our topics, and their needs are the foundation of our work. Our goal is to keep creating varied formats that entertain and inform. We don’t shy away from niche topics and explore new paths across the media landscape. In close coordination with the community and our client, we continuously develop great content – relatable, humorous and informative.

As part of the community, people with haemophilia A can discover content that excites them. They find understanding, useful resources for everyday life with the condition and can share valuable experiences. On social media, followers of @haemophiliea experience the positive energy of ACTIVE A with lots of engaging and useful content!