SMA – three letters behind which lie many faces and individual stories. Stories that show that “normal” is just a matter of perspective. The Face SMA campaign has a clear goal: to show people with spinal muscular atrophy (SMA) and their families the way forward and to give them courage. On behalf of our client Roche Pharma, we created facesma.de, a digital point of contact specifically designed to break down barriers and ensure accessible use.

An SMA diagnosis brings with it an ongoing need for information. We listened to the voices of patients and their families and sought to understand their needs – through interviews, patient panels and close collaboration as a hands-on editorial team. When developing the information website and its content, the input of those affected is essential to making the content relevant and helpful. Face SMA talks about the topics that matter to the community!

facesma.de is not just an information website – it embodies a digital strategy brought to life! The accessible platform offers carefully curated content on living with the condition, treatment options and the latest scientific findings. It also creates space for personal experiences. The vibrant community around Face SMA interacts, shares experiences and also comes together on social media. That’s how we understand connection in all its diversity!